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Advocacy & Education
Below is a free service that allows you to locate who your Federal and State Representatives are.  You can also locate media contacts and get an updated list of current general political issues.  It looks to us like a pretty good service.  Let us know if you find it useful. 
 

Below is a link to a website that explains proposed legislation, now pending in the U.S. Senate, that would criminalize the therapeutic cloning of embryonic stem cells. The word cloning is a often misunderstood and mis-used term. Because of this, some potentially very beneficial research is being threatened, not to mention that parents that choose to treat their children overseas could be charged as criminals under the proposed law. Please visit their website to learn more about this important topic and sign thier petition if you wish.

Main website address: http://www.multiversity.org/stem.htm

Very good link explaining exactly what therapeutic cloning is: http://www.arhp.org/cloning/cloning.pdf


URGENT  - Department of Education Invites Your Comments About IDEA

Sign the petition to help improve Early Intervention services now  CLICK HERE  

The Secretary of Education invites written comments from the public on the Individuals with Disabilities Education Act (IDEA) to assist the Department in preparing for reauthorization of the Act in 2002.  You can read the US Government's website summarizing thier request for public comment here: DEPARTMENT OF EDUCATION

IDEA is the US federal law that governs the states Early Intervention Program for Infants and Toddlers with Disabilities.  You can read the actual law and get lots of other good information from this website. IDEA Part C 

Reauthorization and funding of IDEA is expected to stir a heated debate in Congress. Under the law, the federal government was supposed to supply schools with 40% of the cost. However, Congress has never supplied more than 15% of the promised funds, and for the Early Intervention portion of IDEA funding has not even kept pace with inflation.  Quality of Early Intervention services varies widely from State to State.  However, even in the best states we think all would agree that there is still significant room for improvement.

We have developed a petition that we would like you to consider signing.  It is electronic and should only take a moment of your time.  Please read and sign the petition here: Comments On Reauthorization of IDEA, Is IDEA Achieving Its Fullest Potential? 

We also encourage you to send your own comments directly.  Submit your comments by February 25, 2002.   The DOE requests that you comment on the following areas relevant to Early Intervention:

1.) Parent Involvement.  For parents and professionals involved in the early intervention program under Part C, what barriers have you experienced? In each of these cases, have you experienced any efforts to increase parent involvement that you believe are successful? If so, please describe them.

2.) Use of Insurance under Part C. To what extent are private and public insurance used in paying for early intervention services under Part C in your State? Have parents suffered any financial or other difficulties resulting from the use of their insurance? What difficulties do lead agencies have in accessing public or private insurance?

3.) Excessive Paperwork. For administrators, teachers, or other personnel, describe any burdens you are experiencing in implementing the Part B (or Part C) requirements. What specific requirements are problematic, and what kinds of problems are you having? What recommendations do you have to resolve these problems? What paperwork requirements do little to further educational goals of children with disabilities and/or provide appropriate protections to the children and their families? What paperwork is completed by clerical staff, administrators, special education teachers, and regular education teachers? What paperwork now completed by teachers and administrators could be completed by clerical staff, if they were available? What steps have you taken in order to try to reduce IDEA paperwork burden?

In submitting your comments, please identify the area of your involvement in special education, regular education or early intervention, as well as your role, if any, in that area (e.g., parent, teacher, student, service provider, administrator, or researcher). In addition, if appropriate to your comments, please identify the specific Part and section of IDEA that is the subject of your comments, and specify why the statute needs to be amended.

All comments concerning the reauthorization of IDEA should be addressed to Thomas Irvin, Office of Special Education and Rehabilitative Services,  U.S. Department of Education.  Comments may be submitted via email at:

 comments@ed.gov . You must use the term IDEA Reauthorization in the subject line.

Comments may be sent via traditional mail to:
Thomas Irvin,
Office of Special Education and Rehabilitative Services
U.S. Department of Education
400 Maryland Avenue, SW.
Mary E. Switzer Building, Room 3086
Washington DC 20202-2570.

 
Below is a free service that allows you to locate who your Federal and State Representatives are.  You can also locate media contacts and get an updated list of current general political issues.  It looks to us like a pretty good service.  Let us know if you find it useful. 

 

RESEARCH SPENDING FROM THE US GOVERNMENT NIH WEBSITE...  How much of this money is helping our children...  Speak-up, make a difference!

as of August 5, 2000
from http://www4.od.nih.gov/ofm/diseases/index.stm
->to NIH website home page
 

NATIONAL INSTITUTES OF HEALTH
Research Initiatives/Programs of Interest
       
       
(Dollars in millions) FY 1999 FY 2000 FY 2001
Research/Disease Areas Actual Estimate Estimate
Aging $1,215.0 $1,382.5 $1,454.5
AIDS(Budget Authority) 1,792.7 2,006.2 2,111.2
Minority AIDS 359.9 402.5 426.8
Pediatric AIDS 196.0 220.3 230.7
Vaccines AIDS 182.3 238.7 267.5
ALS 17.2 19.2 19.9
Alzheimer's Disease 406.5 466.4 491.0
Arthritis 238.8 272.3 287.7
Asthma 140.4 158.0 167.3
Autism 40.0 45.5 47.8
Behavioral Research and Social Science Research 1,569.0 1,776.7 1,866.9
Bioengineering 697.5 771.2 812.9
BISTI -- 109.9 147.4
Cancer Research 3,377.3 3,856.6 4,076.8
Breast Cancer 474.7 523.8 553.0
Lung Cancer 163.0 180.7 192.2
Ovarian Cancer 65.4 73.0 77.9
Prostate Cancer 177.5 239.2 271.2
Cardiovascular Research 1,327.1 1,500.3 1,588.2
Chronic Fatigue Syndrome 6.7 6.0 6.3
Clinical Research 4,920.5 5,560.4 5,808.6
Complementary and Alternative Medicine 116.0 160.7 160.3
Cystic Fibrosis 71.6 80.9 85.5
Decade of the Brain (Brain Disorders) 3,122.2 3,567.4 3,760.4
Diabetes * 457.6 525.1 561.0
Diagnostic Radiology 341.9 378.4 393.6
Emerging Infectious Diseases 158.7 184.5 196.0
Fibromyalgia 6.4 6.8 7.1
Gene Therapy 360.8 404.8 426.8
Hepatitis C 39.7 49.0 51.7
Human Fetal Tissue Research 18.6 20.5 21.1
Hypertension 175.4 196.2 206.4
Infant Mortality/ Low birth Weight 383.4 432.1 455.0
Kidney Disease 236.1 267.6 283.9
Lupus 46.1 52.4 55.2
Mental Health 1,089.3 1,244.8 1,313.4
Mind and Body** 110.0 120.6 125.3
Multiple Sclerosis 96.3 107.4 110.5
Muscular Dystrophy 16.7 18.8 19.9
Nutrition 587.5 658.1 695.3
Obesity 161.4 183.1 194.4
Osteoporosis 136.7 154.0 162.7
Parkinson's Disease 132.3 158.2 165.4
Pediatric Research 1,902.8 2,154.5 2,264.0
Polycystic Kidney Disease 11.8 13.6 14.4
Prevention 3,876.9 4,420.0 4,664.3
Rehabilitation 199.2 226.0 238.5
Schizophrenia 200.6 228.7 242.6
Sexually Transmitted Diseases/Herpes 136.4 153.0 162.9
Sickle Cell Disease 50.4 56.4 59.7
Sleep Disorders 119.7 136.4 143.6
Smoking and Health 353.9 392.5 414.2
Spinal Cord Injury 62.1 68.7 70.5
Stroke 186.0 206.5 215.1
Sudden Infant Death Syndrome 49.3 56.1 59.0
Tobacco Research 477.5 529.0 557.8
Topical Microbicides 26.0 29.4 31.6
Tuberculosis Research 72.8 81.7 86.8
Vaccine Development 364.1 434.7 474.8
Vaccine Related 405.8 483.2 526.1
Women's Health Research 2,320.1 2,610.7 2,759.0
* Includes transfer of $27m for Type 1 diabetes research for FY98-02 in accordance with the Balanced Budget Act.

**Mind and Body has been updated to reflect a $10m change in FY 1999.

 


  Budget Figures that were previously posted July 30, 1999:

chart from OFM-NIH

 

 

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